Cyclic Vomiting Syndrome Association
Nordic

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Breaking news from CVSA USA

CVSA USA has revealed breaking news about the Adult Guidelines and can finally reveal today that the have been notified that the American Neurogastroenterology and

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CVSA Nordic need 8.000 Nok to pay for the expenses of keeping this site up in 2019

My CVS-story

Featured story

Rasheera – My Journey living with CVS

To be completely honest my CVS days are filled with memories of the emergency room and buckets filled with stomach vile and vomit. My mom having to lay cold towels on my head and body because I would sometimes run a fever. Her forcing me into a bath of cold

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Why join CVSA Nordic?

By becoming a Member of CVSA you become a critical part of the fight for a cure. Your membership fee help CVSA Nordic to achieve our mission of bringing awareness, education, research, and support!

Thank you for your support!

Individual membership

one person
kr 100 pr Year
  • Email notification when a new post is posted to our blog
  • Access to members-locked chapters of the in-depth information on CVS
  • Access to members-locked blog posts
  • Forum
  • Members-only facebook group
  • Newsletters
  • Vote in the annual general meeting
  • multiple profiles
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Family membership

best value for three or more people in one houshold
kr 250 pr Year
  • Email notification when a new post is posted to our blog
  • Access to members-locked chapters of the in-depth information on CVS
  • Access to members-locked blog-posts
  • Forum
  • Members-only facebook group
  • Newsletters
  • Vote in the annual general meeting
  • Multiple profiles for people in the same houshold
Best value

About us

Our mission is to give support to people with CVS and their families. We aim to raise awareness of the diagnosis of Cyclic Vomiting Syndrome in the Nordic countries, mainly through the website, and to work with CVS Associations around the world to promote the annual CVS Awareness Day on March 5th.

We promote national and international fundraisers to encourage and promote research on CVS.

Our Team
Nina Hellebakken Hagen
Nina Hellebakken Hagen@nina_norway
Leader, Treasurer, Norwegian contact person
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Nina is from Norway and she has CVS Adult onset.

If you would like to contact her, you can write her in Norwegian, Swedish, Danish and English. She will reply in Norwegian or English.
Therese Johansson
Therese Johansson@therese_sweden
Deputy-leader, Secretary and Swedish contact person
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Therese is from Sweden and she has a child with CVS plus.

If you would like to contact her, you can write her in Swedish, Norwegian, Danish and English. She will reply in Swedish or English.
Julia Sarko
Julia Sarko@Julia_Finland
Board member and Finnish contact person
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Julia is from Finland and she has CVS.

If you would like to contact her, she is fluent in Finnish and English.
Ella Helgadóttir
Ella Helgadóttir@Ella_Iceland
Board member, Icealandic contact person
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Ella is from Iceland and she has CVS.

If you would like to contact her, she is fluent in Icelandic and English.
Amanda
Amanda@Amanda_Denmark
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Amanda is British and Danish but has grown up in Norway. She has a child with CVS.

If you would like to contact her, you can write her in Danish, Norwegian, Swedish or English. She will reply in Norwegian or English.
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Medical Advisors
Dr Henrik Arnell
Dr Henrik ArnellMD, PhD, Head (Patient flow captain) of Pediatric Digestive Diseases
Astrid Lindgren Children’s Hospital
Karolinska University Hospital
S-171 76 Stockholm
Sweden

Phone +46-8-51771651
Mob/SMS +46-7-00021185
Fax +46-8-51777712
henrik.arnell@sll.se
Greger Lindberg
Greger LindbergMD, PhD, Professor of Gastroenterology and Consultant Gastroenterologist
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Karolinska University Hospital,
Huddinge,
Sweden.

greger.lindberg@ki.se
Markus Färkkilä
Markus FärkkiläMD, PhD, Neurologist, Professor
Aava Tapiola
Länsituulentie 1 A,
2. kerros,
02100 Espoo
Finland

Aava medical center
0103803838
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What people say about us

Thank you CVSA Nordic for bringing attention to this disease and for helping me find good medicine, so that I can live a normal life.

Cecilia Appelquist

This page has made living with this disease much easier for me and my son who has had CVS 4 years. He was diagnosed a year after he started having symptoms. He’s 17, and his episodes have been much lighter after we have received advice about supplements and medication. He never throws up anymore, and the frequency of episodes is halved. It’s easier to ask doctors about medication when you bring documentation on it to the doctor’s office. It’s also easier for neighbors and friends to believe that the disease is in fact real, when you can name other people with the same disease, and it has a website. To be thought lazy is an unwelcome burden on top of the illness. I’m forever grateful.

Evelyn Vartdal Skurtveit

4 years ago if it weren’t for the CVSA Nordic we would still be completely alone, isolated and in the dark as to what was wrong with our daughter. Thanks to their website and their advice/support we were able to get a formal diagnosis for her. Without that she wouldn’t have the treatment options she has today. They really do care and put in the time and effort in trying to ensure awareness is raised of CVS. Give the support sufferers and their caregivers need

Karen Young