Cyclic Vomiting Syndrome Association


Privacy Policy

Who we are

Cyclic Vomiting Syndrome Association Nordic.
Organisation number: 918757066
Our website address is:

We recognize the importance of your privacy, and apply by the GDPR privacy principles. We are committed to maintaining the trust and confidence of our website visitors and members. We do not collect, sell, rent or trade email lists or any data with other companies, organisations and businesses. This Privacy Policy will provide detailed information on when and why we collect your personal information and how we use it.

What personal data we collect and why we collect it

Member registry

As members of CVSA Nordic, you must register with your full name and email. We keep this information in our member lists until you have canceled your membership. We use this information, along with your member number to identify you as a member of CVSA Nordic, and to communicate with you and send you newsletters.

This information is visible for the  CVSA Nordic team, and will never be shared with anyone else.

You can view and edit this information at any time through your account.


We take precautions to protect your information. When you submit sensitive information via the website, your information is encrypted and transmitted to us in a secure way. You can verify this by looking for a lock icon in the address bar and looking for “https” at the beginning of the address of the web page.

Other data


When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.


If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.

Contact forms

You are requested to fill in your name and email when you contact us through a contact form. This information will not be stored, other than in the email communication itself.

How long we retain your data

If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue. Personal data will be erased 3 months after your membership has expired.

What rights you have over your data

If you are a member of CVSA and therefore have an account on this site, or you have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Select your request:

Embedded content from other websites

Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.

These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracing your interaction with the embedded content if you have an account and are logged in to that website.


We share information about your use of our site with our social media, advertising and analytics partners who may combine it with other information that you’ve provided to them or that they’ve collected from your use of their services.

Cookie Policy

What are cookies?

Cookies are small text files that are placed on your computer by websites that you visit. They are widely used in order to make websites work, or work more efficiently, as well as to provide information to the owners of the site.This website makes use of cookies to monitor visitor sessions. No personal information is stored in the cookie that is issued by the site. The value stored in the cookie is an anonymous identifier, which is not linked to any other personal information you may give us during your visit. If you do not wish to receive these cookies you can disable them in your browser, though doing so may affect the functionality of our website.Most web browsers allow some control of cookies through the browser settings. To find out more about cookies, including how to see what cookies have been set and how to manage and delete them, visit

How do we use cookies?

We may collect technical data about the type of Internet browser and computer operating system that you use, and also which pages you visit and interact with. This information does not identify you as an individual and is used only for tracking site use so that we can improve your experience on the site. We might also place a “cookie” on your hard drive that will help us to identify you when you return to the site and allow us to tailor content to your personal preferences. If you do not wish to use “cookies” you may disable this option in your Internet browser settings. “Cookies” can be removed from your computer.

Third party cookies

Throughout our website we have integrated social media share buttons from third party websites such as Facebook and Twitter. Pages with this embedded content may present cookies from these websites over which CVSA Nordic has no control. You should check the relevant third party website for more information about how these cookies are controlled.