SHARE YOUR THOUGHTS

Erin

Starting in 2008, when I was at Union College, I was throwing up more than normal people — probably every couple of months. I would wake up at about 2 a.m. to puke and would be sick for 16 hours. I always thought it was because of drinking, even though I actually hardly drank at...

Julia

Hello/Moi ? I’m a cyclic vomiting syndrome warrior from Finland. I’ve been sick since 2015. At first I thought it was my thyroid acting up again, like it had some months before… but it was fine. I went to our small local hospital a few times. They said everything was fine. I turned to my...

Therese

I’m the contact-person in Sweden for CVSA and on the board for CVSA Nordic. My son Elias has CVS plus. He has had problems with nausea and vomiting since infancy, but became seriously ill when he was just over one year old. For several years, we practically lived at the hospital. On more than one...

Ella

My first CVS episode came in 2004, when I was 15 years old, while I was working on a farm for the summer. In the following years, episodes came at 6 month intervals, like clockwork. They lasted for 5-8 weeks at a time. And every time I ended up in the hospital with IVs in...

Nina

My name is Nina, and I started having CVS in 2005, when I was 32 years old. It would take many years before I was diagnosed. I am a single mom to a daughter born in 2006, and it was during that pregnancy that I first got sick. I am now 100% disabled by migraines...