Who we are
Cyclic Vomiting Syndrome Association Nordic.
Organisation number: 918757066
Our website address is: https://www.cvsanordic.net.
What personal data we collect and why we collect it
As members of CVSA Nordic, you must register with your full name and email. We keep this information in our member lists until you have canceled your membership. We use this information, along with your member number to identify you as a member of CVSA Nordic, and to communicate with you and send you newsletters.
This information is visible for the CVSA Nordic team, and will never be shared with anyone else.
You can view and edit this information at any time through your account.
We take precautions to protect your information. When you submit sensitive information via the website, your information is encrypted and transmitted to us in a secure way. You can verify this by looking for a lock icon in the address bar and looking for “https” at the beginning of the address of the web page.
When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.
If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.
You are requested to fill in your name and email when you contact us through a contact form. This information will not be stored, other than in the email communication itself.
How long we retain your data
If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue. Personal data will be erased 3 months after your membership has expired.
What rights you have over your data
If you are a member of CVSA and therefore have an account on this site, or you have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.
Embedded content from other websites
Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.
We share information about your use of our site with our social media, advertising and analytics partners who may combine it with other information that you’ve provided to them or that they’ve collected from your use of their services.
We may collect technical data about the type of Internet browser and computer operating system that you use, and also which pages you visit and interact with. This information does not identify you as an individual and is used only for tracking site use so that we can improve your experience on the site. We might also place a “cookie” on your hard drive that will help us to identify you when you return to the site and allow us to tailor content to your personal preferences. If you do not wish to use “cookies” you may disable this option in your Internet browser settings. “Cookies” can be removed from your computer.
Third party cookies
Throughout our website we have integrated social media share buttons from third party websites such as Facebook and Twitter. Pages with this embedded content may present cookies from these websites over which CVSA Nordic has no control. You should check the relevant third party website for more information about how these cookies are controlled.